Thank you for participating in this survey.
Your responses to this survey will be used to perform an expert validation of a cancer-specific patient-reported measure (PRM) that assesses the social participation of people diagnosed with cancer in Belgium, as well as its potential determinants.
Social participation refers to the ability to participate in activities that allow for interactions with others in society or in an individual’s community (maintaining interpersonal relationships (friends, family) and intimate or romantic relationships, participating in the labour market, going to school, participating in leisure or sport activities, etc.).
Objectives of this survey
Throughout this survey you will be presented with items or questions that were designed to measure the social participation of people diagnosed with cancer in Belgium, as well as factors that may be related to social participation. The presented items or questions were based on a cross-matching exercise of the content of existing cancer-specific PRMs and of perspectives of people diagnosed with cancer, collected during focus groups.
Specifically, we ask the experts participating in this survey to evaluate each item by considering two criteria:
- Usefulness: is this item relevant for the measurement of social participation and its determinants for people diagnosed with cancer in Belgium?
- Essentiality: is this item indispensable for measuring social participation and its determinants for people diagnosed with cancer in Belgium?
Additionally, experts are invited, but not obliged, to share any remaining questions or remarks through open text responses.
Important final remark: the SPADIS generic PRM module
While the current survey will present several cancer-specific items on social participation, generic items [including items on diagnosis (e.g. type and stage) and disease trajectory (e.g. treatment vs. aftercare phase)] and item sets on social participation will be included in a generic module. The items of the generic module, which will accompany all disease-specific PRMs in the first dissemination phase of the SPADIS project, are not discussed presently.
There are 69 questions in this survey.
